The ROW Foundation works to improve the quality of training for healthcare providers, and the diagnosis and treatment available to people with epilepsy and associated psychiatric disorders in under-resourced areas of the world. We partner with in-country organizations to maximize impact in under-served areas, both domestically and internationally. We envision a future when the best treatments will be available to all people, at all times, in all the world.
At least sixty-five million people live with epilepsy worldwide. Eighty-percent of these live in low- and middle-income countries where treatment gaps are over 75% (in sub-Saharan Africa, treatment gaps can exceed 90%). Lack of specialists for diagnosis, poor availability of diagnostic equipment and low access to anti-epileptic drugs are barriers to successful treatment of the disorder. Individuals, families, and communities are affected by severe social stigma, loss of education, employment discrimination, loss of income, and sometimes violence and death. Yet this condition can be successfully treated with medication around 70% of the time. Epilepsy is often comorbid with psychiatric conditions such as depression and anxiety. Our expanded charitable purpose now includes programs in psychiatry.
Our approach to the problems of untreated epilepsy is to fund training programs for healthcare professionals (physicians, neurodiagnostic technicians, and community health workers) to build capacity for diagnosis, to provide diagnostic tools in the form of EEG equipment, and to make treatment grants of psychiatric and anti-epileptic medications (for patients and research). We are also interested in innovative ways to solve problems through task shifting, telehealth and research.
We are always happy to begin a conversation with organizations and individuals who share our mission to reduce treatment gaps for epilepsy and psychiatric disorders in under-resourced areas of the world. And while we are a funder of epilepsy programs, we also seek the support of larger funders for new programs to accelerate our ability to meet the diagnosis and treatment needs of the millions of people with untreated epilepsy in under-resourced areas.
Since 2015, ROW Foundation has granted seven EEG units to hospitals in Armenia, India, Kenya, Republic of Georgia and Sudan for the diagnosis of epilepsy and has made training grants for psychiatric and EEG technician training in Africa. We grant ongoing supplies of branded-generic levetiracetam and lamotrigine to 18 partners in 14 countries, as well as emergency humanitarian medication aid to Venezuela and Syria.
Grants of psychiatric medications are planned for 2020. ROW Foundation has started funding programs in psychiatry, beginning with a training grant to Yale University's Global Mental Health Program for The HAPPINESS Project in Imo State, Nigeria.
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- Arabkir United Children's Charity Foundation (Armenia)
- Armenia Artsakh Fund
- Armenian League Against Epilepsy
- ASLEK Epilepsy Foundation (Democratic Republic of Congo
- Boston Children's Hospital (Global Health Program - Zambia)
- Clinique d'Epilepsie de Port-au-Prince (CLIDEP)
- Cuatro por Venezuela
- CURE International Children's Hospital Uganda
- Direct Relief
- Emmanuel Hospital Association (India)
- Epilepsy Association of Zambia
- Foundation for People with Epilepsy (Kenya)
- Georgian League Against Epilepsy
- Global Organization for Health Education
- Grenada General Hospital
- Guiding Light Orphans (Uganda)
- Healey International Relief Foundation (Sierra Leone)
- International League Against Epilepsy
- Kiserem Epilepsy Foundation (Kenya)
- Loma Linda University (Global Health Institute - Malawi)
- Massachusetts General Hospital (Global Neurology Research Group - Guinea)
- Medical Assistance Sierra Leone
- Provision Charitable Foundation (Tanzania)
- Purple Bench Initiative Uganda
- Santokba Durlabhji Hospital (India)
- Save Haven Community Services (Liberia)
- Solidarity Bridge/Puente de Solidaridad (Bolivia)
- Syrian American Medical Association
- TeleEEG (Global)
- Venezuelan League Against Epilepsy
- West Atlantic Brain & Stroke Foundation (Nigeria)
- Yale University (Global Mental Health Program - Nigeria)